January 17, 2008

A Teenager with Disabilities Statement of Love and Courgage

The following is a statement from a client of mine who has disabilities. He is a teenager. He was adopted a number of years ago. Over the last year and a half he has been the frequent victim of bullying based on race and disability from peers. Unfortunately, school personnel have not been responsive to him and have not been protective of him. Despite all that he has been through, he is an amazingly resilient person who has an enormous capacity for love for his parents and courage in the face of adversity. It is students like him that make my job so very satisfying.

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May 14, 2007

Input in His Own Words

The following blog is from a young man about to enter high school. The statement represents his first thoughts, anxieties and concerns about entering high school. It was used at a recent IEP where I represented him transitioning to high school.

This student has LD, organization and executive functioning issues. He also is bright with a dedicated family which can sometimes mask the real underlying educational issues. With this good positive input and some legal umph we had a positive meeting and hopefully designed an IEP to meet his needs for next year.

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February 26, 2007

In the System, but Not of the System

In a few weeks we are going into our son's articulation IEP meeting to High School. Articulation refers to that high stress meeting when we morph a grade schooler into a high schooler. We have had several productive pre-meetings, but this IEP is still a high stress event.

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January 24, 2007

A Metaphor for Our Lives

I recently came across a story of a father, Dick Hoyt, who competes in marathons and Ironman competitions with his now adult son, Rick Hoyt, who is disabled. Besides being incredibly moving and motivating, it forms a metaphor for our lives as parents with children with special needs.

  • In the Ironman swim he pulls his son along in a raft. At times we all have felt that we are pulling and at times pushing uphill and against the current to achieve our goals for our children. This man and his son do that in real tangible ways and achieve their goals.
  • In every aspect of the races and competitions his son is always an integral part of his efforts, and they achieve success or experience failure together.  Parents of children with special needs experience in very real and excruciating ways the successes and failures of their child. I know some will say that is true for all parents, but the successes are so much more hard won for our children with disabilities and the failures so much more disheartening.
  • The deep-seated sense I get from this story is of a father who wants to experience profound moments together with his son without regard to the fact of his disability.  That desire is something that I face and think about all the time. At times I have a struggled fruitlessly to move my son's chair to a dinosaur dig site in Colorado to only get bogged down in the rocks and soil. I was glad that I tried even though my wife was anxiously waiting for me not to fall. Other times I have carried my son, when he was smaller and lighter, up to Native American wall paintings in New Mexico.  These and so many other things are important to experience together between parent and child despite the challenges.
  • Apparently the father began running at the prompting of his son. The son drove the father to run, just as the father literally drives the son.  In my own life, my son and the fact of his disability has been a life-altering experience. As much as I advocate for him and his future, his strength and determination drive me to go on and help others. The mutuality between this father and son pair is something that many of us can relate to and draw strength from.

December 16, 2006

Working On a Miracle

Many of you have written wondering what's up with the blog; no postings in 6 weeks. Well I have two pieces of good news--I am back and intend to be more regular in my postings, and the other news is that I have been away working on a miracle of sorts.  No I do not mean one of the big miracles involving lamp oil lasting for 8 days, or the parting of the water variety, but something much more tangible in my life today.

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September 29, 2006

Catching a Branch...

I believe in the power of courageously sticking with a positive vision for  children with disabilities. The challenges and obstacles to this vision are enormous but not insurmountable.  Sometimes the only thing we have to sustain our vision, as parents and advocates, is what I call “catch a branch.”  This phrase refers to my stubborn faith in a future of positive outcomes despite events which cascade in such a way that the future feels in state of free fall.  Despite this free fall, I force myself to stubbornly maintain faith that even though I have fallen off a cliff [or have been pushed], I will “catch a branch” before I hit the ground and will regain my way.  However, to put this belief in its proper perspective there is a lot of angst, chocolate eating and tirades both public and private which occur before I come to the calmer understanding that I will not go splat and will catch a branch. No, I am not a  saint and not a polyanna.

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June 13, 2006

Reflections on a School Year by Cole Fox

The following blog post is from my son, Cole Fox, who just finished 7th grade in an inclusive placement. He has physical challenges and a seizure disorder. This post reflects back on the difficult times he has had this past year.  I suspect that he has put into words what many students feel at the conclusion of a challenging school year.

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June 02, 2006

A Survival Guide to High School for Students with (and Without) Disabilities By David A. Kuriniec [Part 2]

Below is the second part of the essay and observations by David Kuriniec, who is a young adult with a disability who attends a 4 year University.

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June 01, 2006

A Survival Guide to High School for Students with (and Without) Disabilities By David A. Kuriniec [Part 1]

Two roads diverged in a wood, and I—
I took the one less traveled by,
And that has made all the difference.
-Robert Frost, “The Road Not Taken,” 1916, lines 18-20

I am a young adult with a disability. I atttend a 4 year university and have an enoromous amount of experience to share regarding survival both in High School and in life. At six months old, I was diagnosed with Cerebral Palsy ("CP").   The only limitations resulting from my CP are physical.  Nevertheless, those limitations required the district to provide an aide whose tasks were to take notes and assist in any other essential daily functions.  With the role of the aide came the immediate suspicion on the part of my peers that he or she was the one completing assignments and not me.  I was, despite the aforementioned fact, the talk of the town; you see, I had a motorized scooter, and everyone’s day was made if he or she had a ride on its back at recess.  But as junior high school came, cliques began to form; in other words, students realized that I was different and began leaving me out of activities and sometimes acted as if my existence was not a reality.  That forced me to ask the painful question: “why me?”  Suicide did cross my mind.  But I hung on and found other pursuits, mainly intellectual in nature, to keep my mind stimulated and numb the emotional pain.

Things changed as I entered high school.  In the first semester, because I had a love for baseball, (and still do—Let’s go White Sox!) I wanted to be a sports broadcaster; a position in that arena would allow me to travel the country and experience the game I love.  But then, I sat at home one day and watched ESPN; on the screen, the anchor was detailing the Supreme Court’s holding in PGA Tour Inc v. Martin 532 U.S. 661 (2001).  This case helped to spur my passion for advocacy and catapulted my life in a truly unexpected direction.  It was after hearing about the case that I wrote Congressman Mark Kirk, who has since been a great ally and voice in Congress, supporting initiatives that help to make society more open and accessible to people with disabilities.  But a full explanation of my activism is beyond the scope of this piece; what is important here is that socialization became even harder in high school, because students who I believed were my friends ostracized me because they thought that what I was doing was “gay.”  I realized, after quite a bit of deep thought, that their ad hominem attacks were immature and that they did not truly comprehend the reasons for my actions or its positive impact on the community.

It was because of my struggles and challenges in high school that I began to consider at length the concept of inclusion. I had first considered inclusion in an article I had begun writing for a journalism class. In that class I had detailed the experiences and opinions relative to inclusion of two other students with disabilities and various teachers at school.  Following the completion of the article, I sat down and thought about all the things teachers had done over the course of my entire educational career to ensure that I was truly included.  As I examined the list, I realized that my inclusion was successful because I too had done everything discussed below.  So, without further introduction, here is the list, supplemented with short anecdotes and/or supporting arguments. Students should: 

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January 13, 2006

Shopping for Hope

Recently I ran into a dear parent of another child with special needs, who
has been in the hospital for most of the last 5 months, and has not been
well enough to attend 8th grade all year.  Appropriately enough we met in a
chocolate store [as my wife says MDC means "must devour chocolate"]. She
shared her whimsical shopping list of medical miracles that she hoped to
"find" at Wal-Mart and elsewhere.  Below is her follow up letter detailing
the outcome of her "shopping trip." The real miracle is the undying devotion
of parents and the unwavering courage of this beautiful young man:

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